Caregiver starter pack
We usually don’t get to choose when to become caregivers. A crisis hits and we are dropped into a maze populated by scary monsters, like family conflict or financial ruin, and no guides. This happened...
View ArticleRebel Health
Longtime readers know I’ve spent the last two years writing a book about peer-to-peer health care and the incredible work being done by patients, survivors, and caregivers. (Even longer-term...
View ArticleI’ve got something to say
I have never done much marketing for myself as a keynote speaker, but I am on a mission to change the world. It’s not time to be shy. I want everyone to understand the power and potential of patients,...
View ArticlePre-order Rebel Health
If you are likely to buy a paper copy of my upcoming book, Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care, Barnes & Noble is offering a 25% discount if you order by...
View ArticleCover reveal
I am thrilled to share the cover design for my upcoming book, Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care, set to come out in February 2024 from MIT Press. The design is...
View ArticleWow! How? Health
Patients are leading research into the causes of and cures for their own disorders and conditions. Caregivers are banding together to create the tools and systems they need to keep themselves and...
View ArticleWow! How? Diagnosis
“Anne” is a mother I met in my fieldwork who was happy to share her story, but not her name. Her son had become sick very suddenly, complaining of a combination of symptoms that were difficult to...
View ArticleWow! How? Drug Interactions
This is a cross-post from my LinkedIn newsletter. Feel free to join the conversation there or post your thoughts in the comments below. People who connect with health peers are able to pool knowledge,...
View ArticleRebel Health: Rare Disease
The Global Genes RARE Advocacy Summit in September 2023 provided a forum for me to talk, for the first time, about my upcoming book and how rare disease communities have been a key part of my...
View ArticleRebel Health
My book, Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care, is out in the world! You can pick up a copy at your favorite local bookstore (mine is Politics & Prose) or order...
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