Peer-to-peer health care in 5 minutes or less
This is a highlight reel of my keynote at last year’s Medicine 2.0 conference. I’ll be speaking at Medicine 2.0 Boston on Sept. 15 to discuss patient-provider collaboration for patient safety.
View ArticleYouTube = Health Education Channel
Two videos recently impressed me with their use of illustration and narration to educate an audience about health. First, the most recent video by Mike Evans, MD, who curates My Favourite Medicine:...
View ArticleSincerity in the storm (welcome to our world)
Hurricane Sandy “slapped the snark out of Twitter” for media reporter David Carr. In his column today, Carr discusses a newfound sense of community, which will sound familiar to anyone who uses social...
View ArticleAs the new year incites a rush to become a “new, better and healthier you”…
“…we often do so learning from our peers. When it comes to illness-warranted behavior changes, as like seeks like, it’s often easier to make changes learned from fellow patients with whom you share the...
View ArticleThe boy with a thorn in his joints (and the mom who turned over every rock)
When I was writing the Pew Research report, “Peer-to-peer Healthcare,” I switched back and forth between numbers and stories, national survey data and notes from my fieldwork among people living with...
View ArticleWhat if health care dreams started coming true?
Some new “What if health care…?” dreams are circulating and since they are specifically related to my research, I have to call them out. First, check out this article by Eugene Borukhovich about the...
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A mirror and a window
I’ve been thinking about the role of the Pew Research Center* in the world, particularly in regard to how we communicate and disseminate our work. Here is my idea: We are both a mirror and a window. We...
View ArticleHow many people use “ask a doctor” sites?
Here’s a question I received that I thought was worth a public answer: How many people go online to seek a doctor’s opinion about something, such as on an “ask a doctor” site? Pew Research has not...
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Rare Disease Day 2013
People living with rare conditions inspire my work every day. A few resources to check out: Follow @RareDiseaseDay on Twitter or subscribe to my Rare Disease list Read Wendy White’s post on...
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Caregivers, please share your stories
The Pew Research Center will release a new report about caregivers in June. As we prepare, I’m looking for stories to share with reporters so they can better understand the context for our data. If you...
View ArticleOsasuna, Salud, Health 2.0
I will speak on Monday in Bilbao at an event with 3 names but one goal: to understand how to use social media to innovate and improve health, with a special focus on evidence and the future. I’m...
View ArticlePeer-to-peer health care is a slow idea that will change the world
Someone recently asked me to name the most exciting innovation in health care today. I think he was hoping for a sexy technology tip, like an app that’s catching fire in the expert patient communities...
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Mobile, social, health, care
A clinical trial in Kenya confirmed that human kindness is the secret ingredient to health and mobile phones are an ideal delivery system. Well, that’s my interpretation. Here’s the gist: Taking your...
View Article3 big trends: networks, unbundling, smartphones
Fred Wilson, a venture capitalist, gave a talk at Le Web that touches on health, but even better, provides a framework for thinking about how technology is transforming the world in general: Pew...
View ArticleThe Lake Wobegon effect in health care — and how to fight it
Humans have a tendency to overestimate our abilities and those of people we trust. It’s been called the Lake Wobegon effect, after a mythical place where “where all the women are strong, all the men...
View ArticleOversharing is in the eye of the beholder
I got to quote Thomas Jefferson in an essay I wrote for the Pew Research Center’s FactTank blog today: “Who then can so softly bind up the wound of another as he who has felt the same wound himself?”...
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Hacking home health care
We need to fix the “solved problems” crisis in home health care. Let me explain. At the start of Health Foo* in December, everyone introduced themselves in 6 words or less. Row by row, person by...
View ArticleExtremely rare, incredibly typical
After nearly 15 years tracking the cultural shifts happening at the intersection of health and the internet, I know a few things. #1 – don’t get between a mom and a piece of information she needs to...
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3 home health care hacks
I recently spent an afternoon with a dear relative who is being treated for cancer. Her medication regimen is so complicated that my mom, an experienced caregiver, visits her daily to help sort all the...
View ArticleEvery-day magic
I’ve been following Bertrand Might’s story for a few years through his parents’ blog about his “movement disorder” (which turns out to be related to his incredibly rare condition, NGLY1 deficiency)....
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